Ethical, Legal and Societal Issues (ELSI)
This section contains information on ELSI related matters relevant to medical research and biobanking.
DATA PROTECTION
Privacy Notice and Cookie Notice:
- Website Privacy Notice (https://biobank.cy/privacy-policy/)
- Cookie Privacy Notice (https://biobank.cy/cookie-policy/)
Your Rights:
- Your rights (https://biobank.cy/participants-rights/)
- How to submit a request regarding your rights: You can exercise your rights at any time by sending a letter or email to [email protected] or Information rights request form (https://biobank.cy/contact/)
How to report a data protection incident:
If you believe that a data protection incident has occurred, contact us immediately on 7777 1838 or +357 22892815 or by emailing [email protected] outside office hours.
Office of the Commissioner for Personal Data Protection:
https://www.dataprotection.gov.cy/dataprotection/dataprotection.nsf/home_el/home_el?opendocument
LAWS, REGULATIONS AND TREATIES
GDPR
Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation) EUR-Lex – 32016R0679 – EN – EUR-Lex (europa.eu)
Law providing for the Protection of Natural Persons with regard to the Processing of Personal Data and for the Free Movement of such Data of 2018 (Law 125(I)/2018)
Greek: http://www.cylaw.org/nomoi/enop/non-ind/2018_1_125/index.html
Unofficial translation: https://www.dataprotection.gov.cy/dataprotection/dataprotection.nsf/2B53605103DCE4A4C225826300362211/$file/Law%20125(I)%20of%202018%20ENG%20final.pdf
Directive on privacy and electronic communications
Directive 2002/58/EC of the European Parliament and of the Council of 12 July 2002 concerning the processing of personal data and the protection of privacy in the electronic communications sector. EUR-Lex – 32002L0058 – EN – EUR-Lex (europa.eu)
Charter of Fundamental Rights of the European Union
The Charter of Fundamental Rights of the European Union enshrines into primary EU law certain political, social, and economic rights enjoyed by EU citizens and residents. EUR-Lex – 12012P/TXT – EN – EUR-Lex (europa.eu)
Convention on the Rights of the Child
The United Nations Convention on the Rights of the Child (commonly abbreviated as the CRC or UNCRC) is an international human rights treaty which sets out the civil, political, economic, social, health and cultural rights of children. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-child
OTHER RESOURCES
Resources on Incidental Findings (BBMRI-ERIC) Resources to Learn More on Incidental Findings – BBMRI-ERIC
